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Endocrinologist appointment

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Endocrinologist appointment

Post by mel123 on Sun Jun 22, 2014 10:20 pm

Hi all 

I feel like i`ve been on a roller coaster ride again!!

June`s blood results: PTH 53, corr. cal. 2.58 and vit D 35

March`s blood results: PTH 54, corr. cal 2.65 and vit D 32

Jan`s blood results: PTH 81, corr. cal. 2.62 and vit D 35

The appointment kept swing from positive to negative with regards to surgery.  I reminded her that I was 41 years old with osteopenia of the spine.  The parathyroid scan showed nothing and I am waiting for a ultrasound scan.  At the end of the consultation she said that she will see me in three months after one more blood test and she will probably refer me to a surgeon.  

Three months seems such a long time to wait and still not knowing if surgery will be on the cards or not.  I was surprised that PTH was in normal range and tried to justify this by saying that I`m still having many symptoms.  She said that because in January I started taking a dose of 400 (vit D)  then in March I doubled it to 800 and now I am doubling it again to 1600 that she thinks that is why my PTH has come down which is what she would expect to happen in HPT, I think thats what she said any way, has any one else heard of this?

Thanks 

Mel

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Re: Endocrinologist appointment

Post by lozza on Mon Jun 23, 2014 6:49 am

Hi Mel,
Endo don't seem to rush at doing anything. I think endo just wants to make sure and if endo only wants one more blood tests than that is encouraging. I think the vit d takes around 3 months of supplements before it does anything.

So i think that is why endo is waiting another 3 months. 
sounds like you are very close.

Personally i wish endo would just say think straight out rather than we will wait and do more bloods as it doesn't explain things.

best wishes

Lozza Very Happy

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Re: Endocrinologist appointment

Post by mel123 on Mon Jun 23, 2014 2:21 pm

Hi Lozza

Thanks for your reply.  

Yes it would make life easier if Endo just explained themselves instead of make us play a guessing game. 

I am grateful to my GP who diagnosed me early and I haven't gone through years of waiting for this to happen, like many people on this forum.  So for that I do feel very lucky and sympathize immensely with others struggling to get that far.  However like everyone on here I find it hard to wait another three months as my life passes by.

Oh well at least the sun is shining time to stop moaning!!!!!

Thanks 

Mel flower  flower  flower

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