Anyone achey sore muscles?

Does anyone suffer with achy/sore muscles? I always have tight neck and shoulder muscles, especially this weekend, I'm sure it's why I feel like my head & sinuses are being squeezed!

Today I feel like I've been for a gym workout - forgotten what fitness feels like! I feel like I've lifted weights!!

Does anyone else experience this?

Xx

Yep, been there, got the Tshirt, writing a book about it ....

I have constant muscle aches and pains Lucie and it moves around, sometimes it's in my neck and shoulders, sometimes in my lumbar back, or arms and legs, and it's excruciating when I get it in my calves. On days when it is everywhere and I can hardly move for aching and stiffness I have to declare it a duvet day and retire to the sofa or back to bed with strong pain killers and some form of heat - usually my bunny covered hot water bottle.

Jasmine x

It's so irritating isn't it! I feel like my right side has trapped nerves everywhere and feels stuff and tight. I get a numb feeling in my right arm which I think is from all the tense and tight muscles in my shoulders and neck! Had a heat pad on the other night and had to take it off and was making me too hot!

Yes, Lucie I feel your pain, sadly. The only relief I get from all this is by seeing a Chiropractor every 3 weeks. My neck can get so knotted that it causes the mother of all headaches just to add to everything else. I have a massive pain muscle pain in my thigh right now, caused by exercising my tight calves to ease the plantar fasciitis. It's like a domino effect that when you try to ease one of the aches, you make 2 or 3 more! Sometimes I think you just get so used to pain in the muscles that you only really recognise it when it gets worse. The Chiro is my saviour though and I look forward to visiting him.

Love
Brigitte x

That's the paradox of this disease, you have to use heat to try and get some relief from the pain whilst at the same time using a fan on full blast to cool you down due to your internal thermostat being busted by pHPT! Double whammy ....!

J x

I get exactly the same, terribly tight neck and shoulder muscles and under my right shoulderblade as well.
Thigh muscles hurt, calves are agony and lower back.
I get the squeezey head and sinus pain as well.
Amanda xxxx

Think I may have to try a heat pad tonight under my armpit, I wish it was from a gym workout :-) My gym clothes are gathering dust upstairs!

I'm just about to go and drag my heavy lead legs into the kitchen for a cup of tea!

Have a good day all

Xx

Hi all,

Yes i can relate to all of the above, i have started exercising (riding a bike i have got up to 5 miles!).

I was putting on weight and only being 5ft 1inch i was unhappy with it.

I was wondering does anyone else out there exercise with pHPT even though they ache
 like hell anyway?

I was going to ask my Doctor is it ok to exercise with this condition!

Anyway i have lost 4lbs over the last 10 days  

Achy days are awful and the day becomes a mixture of pain, heat pads, cooling fan, drinking loads of water,then rushing to the loo every 10 times a day!


Still going to get on my bike and peddle off into the Park!!

Take care 

Diana

Well done for your weight loss Diana, and riding through the pain! Impressive grit and determination! Up until two years ago, when my symptoms started to get really bad (although I have been symptomatic for at least 10 years) I was going to the gym and swimming three or four times a week, and loved it. My visits gradually reduced because I just didn't have the energy, and eventually I quit altogether - stupid paying gym membership when I wasn't going. The thing about exercise for me is not so much the pain, I can battle through that, excruciating though it is at times, for me it's the fatigue and lack of energy - I just don't have anything in the energy pot most of the time. When I do have better days I try and get out and just walk, but I don't get very far before my legs feel like lead, I'm overheated and sweaty (sorry for the unpretty image) and just have to sit down before I fall down. It's a nightmare really .... when I'm out with Mr Jasmine he has to walk at a snail's pace and hold my hand just for me to keep up and not fall over, and that's another key thing, balance and dizziness.  No fun is it .....?

Jasmine x

I don't know how you can do that, Diana! I used to force myself to go on the exercise bike for 15 minutes but it would totally drain me. I was told by my Endo, GP and Chiro that I would cause more harm than good if I made myself exercise when my body was in a state. Now I go on it for a leisurely 5 minutes just to keep my legs moving and only when I feel like I can cope. My Chiro worked out a stretching/exercise routine for me that helps joints and muscles but doesn't strain anything. It keeps my body in check and keeps it moving but doesn't overdo it. I try to keep a bit active - you can lose calories doing the hoovering and cooking the dinner - but I'll wait for cycling 5 miles until after surgery I think! 

Everybody's different though and some things work for one person and not another. It's great that you've lost some weight, Diana because that must make you feel great I seem to go through stages where I lose weight continually whatever I do or eat and then gain it for a while. I put it down to this stupid disease and hope I'll come out of it the other side one day as a perfectly normal person......   

Jasmine, I can relate to the walking: Mr O hates to walk so slooooowly though, but he's very good for propping me up! 

Love 
Brigitte xx

I'm the same as you Jasmine. I'm only 31 and always been very active and on the go. I used to exercise 3-4 times a week but I've been at a point in the past year where I just cannot tolerate any exercise. My hip aches horrendously and I just can't tolerate the fatigue whilst trying to exercise. Even walking around a shop I could easily just sit down as I feel like I've run a marathon 

Xx

Dear Lucie, 

The hip pain was my first really troubling symptom a few years back. There were points when I actually cried with pain. Before that I too used to go to the gym 4-5 times a week. It wasn't like any kind of normal injury.

Last year, a combination of two things saved me. Firstly, I started working with a trainer at my gym who had a lot of physio experience. When I started I was terrified of making it worse so I needed that ressurance of being supervised by someone who I trusted. He made me do a million different lunges and squats. Yes, it hurt. Yes, sometimes,  i wanted to hit him. Yes, I was absolutely shattered. There were days when I literally just got up and dressed to meet him and workout for an hour before going back to bed. He made sure that i was using all my muscles and not compensating for the pain by putting my weight through the other leg and causing further muscle problems. This got my fitness back and I now have a much more balanced posture. (It also helped that he was very cute.  )

Second thing, weirdly, was reducing my dairy intake, especially milk, cream and cheese. This was long before I knew anything about HPT. To compensate I ate lots of dark leafy greens and pulses. The pain slowly disappeared. I didn't realise there was any connection until The holidays when I ate a lot of cream and full-fat milk. Suddenly my hip started stiffening up again. I tried to work out what was different and started experimenting with my diet. 

I think full fat milk and cream are especially troublesome because they have the triple whammy of calcium, vitamin D and estrogen. Estrogen helps convert vit D, vit D helps absorb calcium so combine that with calcium too and you have the perfect source of calcium.

Now I have made the link with pHPT i assume it was affecting my bone resorption and therefore the hip pain. I now push myself to workout 2 a week as weight-bearing exercise is really the only thing I can do to stop my bone density dropping, that and avoiding foods that encourage calcium excretion like salt, animal protein, fizzy drinks and caffeine. I eat some dairy to stop myself becoming lactose intolerant, mostly low fat yoghurt.

I'm not going to lie, when my vit D is low I struggle to even leave the house, my gym attendance is nothing like it used to be, but I would encourage everyone, when you feel able, to keep moving even if it's just a short walk or some yoga. Exercise is a much bigger factor in preventing osteoporosis than diet.

There was a point I thought I would never be free of the hip pain, but I am now and have been for the last year. I am so grateful to my trainer for giving me my mobility back. You never miss it til it's gone right?

Love
Dee

xxx

I think it's great if you can exercise and I try to walk as much as I can, I garden when I can and apart from when I'm working during the day I don't sit around.....but I don't have enough energy to even get me through the day, just doing that bit of gardening or cleaning the house I have to do in shifts because it leaves me wobbly and breathless.
I am very lucky that I don't need to loose weight but my body is not the same as it was, it hurts all over and when I have had a very active day I feel like hell for the next 3-4 days after.
Sometimes I stand at the bottom of the stairs and have to psych myself up to walk up them.
It's not right to feel this exhausted every day and I find this one of the worst symptoms, my love of life and get up and go are being taken away from me by this disease and I really hate that.
Amanda xxxx

With you on all that Amanda. I have to go up the stairs a few at a time then take a few seconds rest in between - and I live in a three storey house!

I also have to do jobs around the house and garden in stages - do a bit, rest a bit - until I get it all done. After a few minutes exertion I feel exhausted and breathless and very overheated, and like you a busy day leaves me feeling pants for the next few days. My elderly mum is disabled and I have to take her for all her (many!!!!) hospital appointments, and to go shopping etc, and after a day pushing her around in her wheelchair I'm done in! It feels like life is on hold and it's just a matter of putting one foot in front of the other just to keep going. It's not a life, it's an existence compared to how life used to be. There, OK that's my five minutes of 'poor me' for today lol. 

Jasmine x

I'm with you on the "poor me" parade today Jasmine  
It must be exhausting for you coping with all the things you do with your Mum you are a star  
After my kids and their partners were all in for dinner yesterday I'm shattered and am trying to get it together enough to work on the laptop without falling asleep mid type !!!!
I forgot to do something important this morning and was going to tell you what it was but I've forgotten   
It's happening a lot lately, it's such a pain !!!
I really really want my life back.
Amanda xxxx