Sleep disturbance in pHPT
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Sleep disturbance in pHPT
I found this quite interesting as sleep disturbance is one of the most irritating, annoying and debilitating symptoms for me, which is what I was thinking at 2am this morning - and 3am, 4am .......so on and so forth ad nauseum!
Jasmine x
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945278/
Jasmine x
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945278/
Jasmine2- Posts : 751
Join date : 2014-03-30
Location : Cambridgeshire UK
Re: Sleep disturbance in pHPT
Hi Jasmine,
Thank you for the link and have just read through it all, wishing and hoping that one day I will be able to have a proper nights sleep if I ever manage to get surgery. I slept in this morning ha ha as I was awake several times like you tossing and turning. Sometimes I feel more worn out than when I went to bed lol.
We were in Aldi recently and Mr L got me an activity monitor. It was a waste of money but one thing that it is useful for is that it monitors your sleep pattern, it is like a wristband that you wear. I think he gets fed up of me saying I don't sleep well etc. Since using it I find I am awake at least 6 or 7 times every night. I fall asleep almost immediately and get 2 or 3 hours sleep and then the tossing starts, trip to bathroom etc. One thing it shows is that sometimes I am not awake as long as I think I am, but it is not deep sleep which we all need. I cannot remember the last good nights sleep I had, probably over ten years ago.
Take care and hugs Sue x
Thank you for the link and have just read through it all, wishing and hoping that one day I will be able to have a proper nights sleep if I ever manage to get surgery. I slept in this morning ha ha as I was awake several times like you tossing and turning. Sometimes I feel more worn out than when I went to bed lol.
We were in Aldi recently and Mr L got me an activity monitor. It was a waste of money but one thing that it is useful for is that it monitors your sleep pattern, it is like a wristband that you wear. I think he gets fed up of me saying I don't sleep well etc. Since using it I find I am awake at least 6 or 7 times every night. I fall asleep almost immediately and get 2 or 3 hours sleep and then the tossing starts, trip to bathroom etc. One thing it shows is that sometimes I am not awake as long as I think I am, but it is not deep sleep which we all need. I cannot remember the last good nights sleep I had, probably over ten years ago.
Take care and hugs Sue x
Lucycatnaps- Posts : 376
Join date : 2014-03-30
Location : Lincolnshire
Re: Sleep disturbance in pHPT
This is really interesting, Jasmine and Sue.
At the side of the paper Jasmine quotes is one describing something called "Pasieka's symptom scores in PTH disease" which quotes a set of symptoms that can affect the quality of life of PTH sufferers:
http://academicdepartments.musc.edu/surgery/education/journal_club/08-09/november1.pdf
I haven't read it through yet, but it might be useful for anyone struggling to get a diagnosis from an endo who says (as mine did) that (a) HPT has no symptoms, (b) any symptoms are from high calcium, (c) you don't have high calcium, ergo (or whatever the Latin phrase is to use at this point) (d) therefore you can't have any symptoms.
I'll be re-educating her on that point very soon!
Love from Tigerlily xxxx
PS. I'm the same with the non-sleeping - I can do 11-2, and then I start all the tossing and turning.
Eventually I go downstairs and chat to Audrey or Nancy!
Love from Tigerlily xxxx
At the side of the paper Jasmine quotes is one describing something called "Pasieka's symptom scores in PTH disease" which quotes a set of symptoms that can affect the quality of life of PTH sufferers:
http://academicdepartments.musc.edu/surgery/education/journal_club/08-09/november1.pdf
I haven't read it through yet, but it might be useful for anyone struggling to get a diagnosis from an endo who says (as mine did) that (a) HPT has no symptoms, (b) any symptoms are from high calcium, (c) you don't have high calcium, ergo (or whatever the Latin phrase is to use at this point) (d) therefore you can't have any symptoms.
I'll be re-educating her on that point very soon!
Love from Tigerlily xxxx
PS. I'm the same with the non-sleeping - I can do 11-2, and then I start all the tossing and turning.
Eventually I go downstairs and chat to Audrey or Nancy!
Love from Tigerlily xxxx
Tigerlily- Posts : 1252
Join date : 2014-04-04
Age : 71
Location : Sudbury, Suffolk
Re: Sleep disturbance in pHPT
Did you notice who co-penned the paper in your link Tigerlily? A certain Mr Gregory Sadler, whose protégé was a certain MTK, who gave you the brush off as being a silly old menopausal whinge .......
J x
J x
Jasmine2- Posts : 751
Join date : 2014-03-30
Location : Cambridgeshire UK
Re: Sleep disturbance in pHPT
Very interesting Jasmine, I'm with the 11-2 crowd then it's on and off until I get up. Tigerlily that MTK deserves all he gets from you !!!!
Love Amanda xxxx
Love Amanda xxxx
Amanda Lynne- Posts : 1080
Join date : 2014-03-30
Age : 61
Location : South East England
Re: Sleep disturbance in pHPT
Well spotted, Jasmine, so it is!
I think Greg Sadler works out of the John Radcliffe Hospital, Oxford - for the info of anyone out that way.
It was a choice for me at the time between him and MdaK, but when I enquired of Greg Sadler's (very helpful) Secretary, she said that if I saw him on the NHS at the JR there was no guarantee that he would do the operation himself, and it would probably be "one of his team".
Thanks, Amanda - still enjoying ruminating on how I go about re-educating MdaK ..... !!
Love from Tigerlily xxxx
I think Greg Sadler works out of the John Radcliffe Hospital, Oxford - for the info of anyone out that way.
It was a choice for me at the time between him and MdaK, but when I enquired of Greg Sadler's (very helpful) Secretary, she said that if I saw him on the NHS at the JR there was no guarantee that he would do the operation himself, and it would probably be "one of his team".
Thanks, Amanda - still enjoying ruminating on how I go about re-educating MdaK ..... !!
Love from Tigerlily xxxx
Tigerlily- Posts : 1252
Join date : 2014-04-04
Age : 71
Location : Sudbury, Suffolk
Re: Sleep disturbance in pHPT
Hi Jasmine
As you know I just had surgery a few weeks ago and the most benifical thing for me now is I get a good nights sleep.
Pre surgery I would go to bed exusted and fall asleep no problem then after a couple of hours I would need to get up to go to the toilet, then I would more of less watch the clock until it was time to get up for work.
Having a good nights sleep makes such a big difference and sometimes I don't even need to get up to go to the toilet which again is a bonus.
Mary x
As you know I just had surgery a few weeks ago and the most benifical thing for me now is I get a good nights sleep.
Pre surgery I would go to bed exusted and fall asleep no problem then after a couple of hours I would need to get up to go to the toilet, then I would more of less watch the clock until it was time to get up for work.
Having a good nights sleep makes such a big difference and sometimes I don't even need to get up to go to the toilet which again is a bonus.
Mary x
MaryM- Posts : 30
Join date : 2014-06-09
Re: Sleep disturbance in pHPT
Oh Mary, I dream of having a good night's sleep again ..... well, I would do if I could only get into a deep 'dream' sleep for a couple of hours before I wake up to clock watching duty .... So pleased that things are returning to normal and you're getting your life back again.
Jasmine x
Jasmine x
Jasmine2- Posts : 751
Join date : 2014-03-30
Location : Cambridgeshire UK
Re: Sleep disturbance in pHPT
That's such a good result, Mary - like Jasmine, I'd give a lot for a night of refreshing sleep.
Keep posting on your improvements - it keeps us all motivated.
Love from Tigerlily xxxx
Keep posting on your improvements - it keeps us all motivated.
Love from Tigerlily xxxx
Tigerlily- Posts : 1252
Join date : 2014-04-04
Age : 71
Location : Sudbury, Suffolk
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