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GP refuse to test Calcium & PTH until Jan 2015!

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GP refuse to test Calcium & PTH until Jan 2015!

Post by Lucie83 on Fri Sep 05, 2014 11:31 am

First topic message reminder :

Hi All

I've just been to the GP begging to give me regular PTH & Calcium but they have insisted it's not needed but are willing to test every 6 months  Sad  I nearly burst into tears! I don't know what to do! 

Lucie x

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by NancyMi on Mon Sep 08, 2014 2:54 am

Nelly,
       Good advice.  I think many people have had to bypass the endo and go to the surgeon.  Lucie,  like you my calciums have been the upper part of normal but at it's highest, the PTH level went to 144 which according to one of the graphs of Jim Normans site, was on the downside of the bell curve. 
       My bones are in bad shape and I think it is from years of untreated PTH disease.  I don't smoke and am very active.  In 2010 the t-score was -3.27.  In 2012 it was -3.44 and then in july of this year it was -3.69.  All the while I was complaining of an inability to sleep, reddened eyes, anxiety and weakness. 
      Isn't it appalling that we have to ask again and again for help.
      FP sounds great.  Maybe he's the way to go.

Nancy

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by Lucie83 on Mon Sep 08, 2014 9:38 am

Hi Nelly & Nancy,

I replied to FP and asked whether he would be willing to see me but also not wanting to waste his time at the same, if that makes sense. I'm hoping he will but he may not feel he can do anything for me at the moment as blood work is needed to prove anything.

Maybe he's had a good weekend and he'll be feeling generous.

Nancy - my eyelids and eyes are always red and sometimes feel like they burn!

Lucie x

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by MaryM on Wed Sep 10, 2014 8:59 am

Lucie

Sorry to hear all you are going through.
GPs are useless at times as they do not know enough about this bloody disease.
Endos are the same at times with all this "just wait and see" rubbish.
I have been in your shoes with only getting the PTH tested once or twice a year and the only way I knew my calcium was high was I get bloods done monthly for another disease and the calcium was always well above the normal range. My GP would just ignore it as I was seeing the Endo at the hospital.
Mary x

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by Little Audrey on Wed Sep 10, 2014 11:37 pm

Well, I can't add anything when you are all discussing UK doctors and surgeons, but I can say that you can add me to the list of confused forum members, because it's VERY hard to keep track of where everybody is with this disease. You're certainly not alone, Meggy!!

Audrey

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by Meggy on Wed Sep 10, 2014 11:42 pm

We need a profile page for each person we can click where we can see where everybody is at. We could also have yes/no boxes, eg, my endo is an idiot, my gp is a monkey... :-)

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Re: GP refuse to test Calcium & PTH until Jan 2015!

Post by Hadleigh on Thu Sep 11, 2014 8:16 am

There is a profile page Meggy, you can add your hpth journey in the comments box

Naming and shaming is a tricky area Suspect

Nelly
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Re: GP refuse to test Calcium & PTH until Jan 2015!

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