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I didn't win the lamps ......!

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I didn't win the lamps ......!

Post by Jasmine2 on Wed Sep 10, 2014 12:29 pm

I've just had an email from Fausto Palazzo - I have tested negative for FHH! I'm so relieved I could cry! Well, I did cry ....! He has confirmed that I do indeed still have pHPT in spite of my low urine calcium and we will now press on with venous sampling and 4D CT to try and locate the rogue adenoma, starting with the 4D CT. He is making the arrangements. I'm not going to get my hopes too high just yet as we first have to locate the adenoma, and FP still may refuse me another surgery if it turns out to be in my neck but hey, at least he's throwing me a lifeline!


Jasmine x
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Re: I didn't win the lamps ......!

Post by Amanda Lynne on Wed Sep 10, 2014 12:41 pm

I'm really pleased for you Jasmine you are in good hands.
Love A xxxx
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Re: I didn't win the lamps ......!

Post by Lucie83 on Wed Sep 10, 2014 1:03 pm

Great news Jasmine! Must be a relief. I agree, you are in safe sensible hands.

Lucie xx

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Re: I didn't win the lamps ......!

Post by Brigitte0 on Wed Sep 10, 2014 2:23 pm

Huge sigh of relief Jasmine! Hope the 4D CT and venous sampling are now a priority. You must be so relieved - I'm so pleased for you. 

Love and loads of hugs 
Brigitte xxxx
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Re: I didn't win the lamps ......!

Post by Tigerlily on Wed Sep 10, 2014 5:29 pm

Yes, so glad for you, Jasmine - and hope he gets you back to his clinic pronto.

Love from Tigerlily xxxx

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Re: I didn't win the lamps ......!

Post by Little Audrey on Wed Sep 10, 2014 7:54 pm

cheers YAY!!!! WONDERFUL news, Jasmine!!! One less thing to worry about. I'm so very happy for you. It is so nice when we get to share good news, and so nice to learn something has gone right for someone! The time of you being well again is getting closer and closer! cheers

Audrey

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Re: I didn't win the lamps ......!

Post by Lucycatnaps on Wed Sep 10, 2014 10:18 pm

Hi Jasmine,
It must be such a relief to have been cleared of the FHH label and I hope it is now full speed ahead to having all the location tests.  I am really happy that things are looking more hopeful for you and that you will have the best team at the Hammersmith to get you sorted.
Hugs Sue x
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Re: I didn't win the lamps ......!

Post by Meggy on Wed Sep 10, 2014 11:36 pm

Excellent news, especially that he's still moving forward to get you cured. Onwards & upwards:-)

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Re: I didn't win the lamps ......!

Post by Kathi209 on Thu Sep 11, 2014 3:31 am

Wonderful Jasmine, you will have to let me know how the venous sampling goes as I am sure you will be doing that before me. If I do it first I will let you know. I say onward for the cure. Very Happy Very Happy Very Happy Very Happy Very Happy Kathi

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Re: I didn't win the lamps ......!

Post by Jasmine2 on Thu Sep 11, 2014 8:08 am

Thanks everyone! Yes, onwards and upwards! Kathi, I forgot you were also waiting for venous sampling. This wretched disease ..... Grrrrr, can't remember diddly squat ....! Meggy's idea is good about having a profile page for everyone so we can have a reminder of where we're all at in this process. Yes Kathi, we'll swap notes, although I may not get it first as I think I'll be having the 4D CT first and it's highly unlikely they'll be on the same day as my understanding is that venous sampling is a fairly invasive procedure.

Jasmine x
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Re: I didn't win the lamps ......!

Post by Hadleigh on Thu Sep 11, 2014 8:19 am

Profile page has always been there, just put your story in the comments box.

Nelly
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Re: I didn't win the lamps ......!

Post by Jasmine2 on Thu Sep 11, 2014 8:57 am

Oh I didn't realise that Nelly, thanks for the nudge.

J x
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Re: I didn't win the lamps ......!

Post by Meggy on Thu Sep 11, 2014 10:01 pm

I guess it's because I'm using the mobile site: no icons, no profiles and no log in page so I keep having to click onto the main site, log in and change to the mobile site so I can read it:-(

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Re: I didn't win the lamps ......!

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