On the operation waiting list!

Hi Diana,
It is lovely to hear from you and that your Mum is doing a lot better.  I know how worrying it can be when they are getting older and more frail.  I am so glad that you appointment went really well and that finally you will be getting surgery and the help you desperately need.  It sounds like you must have a very large adenoma in their and I think you are the most capable hands possible to get it out.  Do you have any idea how long the wait will be??
Really pleased you had good news
Hugs Sue

Good news Diana hope you don't have to wait to long.

Nelly

Such good news, Diana - both about your Mum and your consult with FP.

Yes, he sends a very comprehensive letter back to the GP, so I'm sure it will all be in there.

So glad you are in FP's safe hands with all of this, Diana, and that he told you you really need this operation. I am sure he will organise it so that you don't have to wait too long.

You deserve the Chardonnay - Cheers m'Dear!

Love from Tigerlily xxxx

Brilliant news Diana! I'm so glad your Mum is recovering now too; that must be such a relief. I would think you wouldn't have to wait long before your op so that you can get it over and done with. There'll be a new you before you know it  

Take care: love and hugs

Brigitte xxxx

Wonderful news, Diana! So glad your mother is recovering, and you are on your way to surgery!! YAY!!! It is always so nice to hear good news!

Audrey

Can you keep us posted, Diana, on your further tests/scans/etc?
I assume FP located the adenoma via the CT scan?

Sorry - lots of questions from those of us following behind you!
Don't disappear from the forum, though, whilst waiting, or we won't know when you have your op, and we all like to send our best cats and cyber-hugs!

So glad it's all happening for you, Diana.

Love from Tigerlily xxxx

Hi Tigerlily,

I will keep in contact about tests, the operation and my recovery process, i am only to pleased to help others via my experience, that's what this forum is all about informing and helping each other.

FP said on the basis of the first 3 tests, blood work, CT scan and the bone scan, confirmed it for him and he seemed very confident, so it was the CT scan that clinched it i think and the Parathyroid Venous Sample done at my local hospital.

The rest of the tests are i assume scans to check that there is no calcification of the kidneys and check the other Parathyroids.

Much love
Diana x

Thanks, Diana - forgot you had a venous sampling done locally.

Best of luck with the other tests. So glad you have FP looking after you.

Love from Tigerlily xxxx

Wow Diana, 
     This was a lot to take in but like many have mentioned, you will be in good hands. 

What were your bone mineral density test results like?  Just wondering since your numbers are quite up.  Have you also had fatigue, muscle pain and some anxiety?   I found the anxiety to be terrible when my PT%H level was up to 144. 

    So good to hear everything is lined up.   Will you avoid vit D and calcium while you are waiting?

Nancy

Hi Nancy,

Yes i do have had fatique, muscle pain and anxiety. I have in the last few months had headaches and nausea.

FP didn't mention my bone density test results, he went straight into confirming the operation, when i asked for him to write these down, he replied, don't worry he will send a letter to my GP with the results and i will get a copy.
To be honest i was stunned that he had found it in such a difficult location, and his said the next time i would see him would be at the operation!!!
Yes i will avoid calcium, but i will take a low dose of vitamin D.

Take Care

Diana x

Hi Diana

Wow your reading are high, mine only ever went as high as Calcium 2.9 and PTH 15 and they were really concerned when they were are this level.

I am glad that you are on the waiting list and that you don't have to wait too long.

Good news about your mum.

Mary x

Hi Mary,

How nice to hear from you.
How is your recovery process going?
Yes i agree my numbers are high and i am hoping that FP will take this under consideration, but like everyone else i am on the waiting list, which is a massive step up for me, at least i know i am getting some where.

Take care Mary

Diana x

Hi Diana

Everything is going well.
I am really starting to feel the benefit now after having the OP.

Gone are the headaches, heartburn and the constant thirst but best of all I am sleeping a lot better.
Also I feel more like my old self again which is amazing.

I have other health issues so I am always sore somewhere and I do still suffer a bit with fatigue but it does not seem as bad but that is probably because I am getting a good nights sleep.

I am really glad things are progressing for you.

Mary x

That is good news Mary, so pleased to hear you're starting to feel so much better, gives us all a boost to hear that.

Jasmine x

Thank you Mary,

Yes it must be great getting those extra hours sleep and not waking up to quench a thirst.
I'm glad you are getting back to your old self, with Parathyroid disease you feel like an endless list of symptoms that completely drain and exhaust you.

So happy for you!
Take care
Diana x

Yes, happy to hear of your post-op improvements, Mary - especially a good night's sleep!
Makes us think there is hope!

Love from Tigerlily xxxx

Hi, just handed in my 24 hour urine specimen, decided to take a taxi
Instead.
Now waiting for ultrasound scans on my kidneys and Parathyroid both.
Now all have to do is wait for my operation date, as all tests are in!!

Diana

Hope you don't have to hang around waiting for too long Diana. I'm glad you're moving forward rapidly. Soon this will all be a nasty nightmare! 

Love and hugs 

Brigitte xxx