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Forum Privacy

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Forum Privacy

Post by Guest on Mon Apr 07, 2014 12:50 am

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Last edited by gina3 on Fri Apr 11, 2014 10:13 am; edited 1 time in total

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 8:20 am

Hi Gina

I think that's why many of us adopt user names which don't include our full names, as it anonymises us. I feel, and it's only my personal view, that it's valid to have it enabled so that the public can see it as it helps guests to decide if this is the right forum for them and what we post just might help someone even if they don't want to join us.  But of course, I'm happy to go along with whatever is felt to be the best course of action.  

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Re: Forum Privacy

Post by Lucycatnaps on Mon Apr 07, 2014 9:12 am

Hi Gina,
I fully understand your concerns but I think the benefits of the forum being public outweigh the negatives.  I agree with all that Jasmine has written,  I found the old forum by searching and although I could not join the information available was a huge comfort and help when I first thought that I may have this condition.  I think the key is being aware that it is public and I try to only write things that I am comfortable with the whole world knowing! 
Sue


Last edited by Lucycatnaps on Mon Apr 07, 2014 9:17 am; edited 1 time in total
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 9:14 am

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Last edited by gina3 on Fri Apr 11, 2014 9:56 am; edited 1 time in total

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 9:22 am

Hi Gina, like Sue, I do understand your concerns and you are absolutely right to raise the point.  We have to feel comfortable within the forum to say what's on our mind, and open things up for discussion, without fear of judgement or criticism because that's not what we're about.  I'm not sure about the mechanics of it all as I'm a bit of a techno dunce  Rolling Eyes  but is it possible, if you wanted to that is, to change your user name in your profile?

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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 9:26 am

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Last edited by gina3 on Fri Apr 11, 2014 9:56 am; edited 1 time in total

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 9:29 am

Can you not re-register with a different username and password then delete your original profile/registration?

J
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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 9:30 am

Looks like you were successful Gina3......?
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 9:30 am

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Last edited by gina3 on Fri Apr 11, 2014 9:56 am; edited 1 time in total

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 9:33 am

Basketball Good stuff!
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 9:36 am

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Last edited by gina3 on Fri Apr 11, 2014 9:57 am; edited 1 time in total

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Re: Forum Privacy

Post by Lucycatnaps on Mon Apr 07, 2014 9:42 am

Noooo Gina, 
Please don't leave!  We definitely need someone who can figure out stuff and design fantastic avatars, it would never have occurred to me at all that all you have to do is retype a name, no smacks here just gentle hugs Smile
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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 9:45 am

No cyber slaps, just cyber hugs!   LEAVE...?   Shocked  Not on my watch ....... Laughing
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 9:50 am

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Last edited by gina3 on Fri Apr 11, 2014 9:57 am; edited 1 time in total

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Privacy

Post by Admin on Mon Apr 07, 2014 10:23 am

gina3 wrote:I was wondering if Admin were aware that the forum can be seen and read by anyone?  As we post some personal stuff on here it may be prudent to exclude the general public from viewing and limit viewing to members only.    Just a thought.

Hi Gina3

Thank you for your feedback and I understand the issue that you have raised.
It is a valid point and concerns about privacy are always taken seriously.
It was a conscious decision to make the forum public, as public forums have been very helpful to both Mrs Admin and me.

As has already been mentioned above, members can choose how much, or how little personal information they include in their Profile.
To some extent, we are all anonymous, because we do not really know each other and have never met, but this does not prevent us from sharing our problems, joys and humour.

The primary purpose of this forum is to provide support for people with a very unpleasant medical condition.  If reading the forum without joining helps some people, then we, as a group, have achieved something for which we should be proud.

I am pleased that you have found a way to stay with us.  I was going to offer to change your user name, but you beat me to it ;-)

Edwin (Mr Admin)
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 10:31 am

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Last edited by gina3 on Fri Apr 11, 2014 9:58 am; edited 1 time in total

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 10:38 am

You could have used 'foggy brain' ..... a most appropriate user name for this group.....lol!
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Re: Forum Privacy

Post by Guest on Mon Apr 07, 2014 10:45 am

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Last edited by gina3 on Fri Apr 11, 2014 9:58 am; edited 1 time in total

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Re: Forum Privacy

Post by Little Audrey on Mon Apr 07, 2014 9:52 pm

Wow, you all being there in England, get a real jump on me with all the comments!    I didn't think anybody had commented on this yet.   I just noticed I've missed a lot here!

I too feel it is best to leave the forum as a public forum.    I don't really have anything to hide.  I do hope somebody can learn from the things I post, and I figure the more people who can see it all, the better.

I'm happy you all scolded Gina for thinking about leaving!!!    On, my goodness, Gina, what were you thinking?!!

Yes, Foggy Brain would be a great name, Jasmine!     I could think of a few more good names, but I don't think I should post them.   Laughing

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 10:01 pm

Yup, Audrey, let's keep it clean .....  Shocked  Very Happy Although I can think of a few 'choice' names too which are unfit for public consumption .......

Jasmine x
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Re: Forum Privacy

Post by Admin on Mon Apr 07, 2014 10:16 pm

Well, Fanny used to be a popular first name.

It comes from Latin and meant someone who comes from France.  It is a pet form of Frances and was popular in the 18th and 19th centuries.

Some of us Brits are old enough to remember Fanny Craddock, the first TV celebrity chef.

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Re: Forum Privacy

Post by Jasmine2 on Mon Apr 07, 2014 10:29 pm

Ah yes, Fanny Cradock.... Bless her harridan heart!  Poor old Jonnie (hic!) she gave him a dog's life....really showing my age now...oops! What I meant to say was I remember my mum talking about them  Wink

Could have adopted some fab names from the late, great Kenny Everett but again, unfit for public consumption.

I'm sure all you 'across the pond-ers' have some equally salubrious and outrageous golden oldies.....?

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Re: Forum Privacy

Post by Little Audrey on Mon Apr 07, 2014 11:21 pm

This gives entirely new meaning to the Bee Gees song, "Fanny (Be Tender With My Love)," doesn't it?   affraid Geez, I used to go around singing that song!   If I'd only known! 

Oh, yes, we have our share too, Jasmine.    Smile

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Re: Forum Privacy

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