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Hello from Oxfordshire

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Hello from Oxfordshire

Post by PatD on Mon Jan 04, 2016 2:53 pm

Hi, my name is Pat. I "fell" into the diagnosis of hyperparathyroidism by accident. The Doctor I have seen so far says I will feel better once treated and people on this and similar forums talk about feeling normal. I do not remember when I last felt normal, what is normal?
From 1980 I was mother and carer to my severely disabled son Steve which brought with it sleepless nights, emotional stresses, constant tiredness, aches and pains from lifting and pushing wheelchairs as well as running the home whilst Mr D went to work. I also did some voluntary work to keep me from going mad. 8 years ago our beloved son died following a period of illness and 6 months after his death I returned to full time admin work at the age of 54. Like a lot of offices we were running short staffed for a large period due to staff illnesses an maternity leave etc. So I was still constantly tired as well as all the emotional stuff. I then had pneumonia about 3 years ago. About 18 months ago I started to work part time and I am still constantly tired. My tiredness I have put down to my advancing years, I am now 61, my emotional state on the death of our son and my aches and pains on ageing and a family that seem to succumb to all things "rhuematiccy"
So I have not actively gone out to find out what the problem was, as I put all my symptoms down to my age and my life.
So how did I "fall" into this diagnosis. One Sunday afternoon way back in March 2015 I decided to take some flowers to our sons grave, on the way to the garden centre I fell, and fractured my elbow. The hospital sent me for a bone density scan which included blood tests, it was at that time that my calcuium levels were picked up on. Following more blood tests the Dr at the bone clinic has arranged for the scan and an appointment with a surgeon . The scan was meant to be today but has been postponed until 19th as I have a terrible cough and cold since Christmas, the appointment with the surgeon is in three weeks.
I must have a guardian angel as without the fracture (it was not a bad one) I would be none the wiser, just thinking ageing is no fun at all. I hope in a few months time I will know what my new normal is. I hope it will better than the normal I know at the moment.

PatD

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Re: Hello from Oxfordshire

Post by Hadleigh on Mon Jan 04, 2016 8:23 pm

Hi Pat and welcome

Sounds like you have had problems for a good while, not uncommon as many of us have just plodded on thinking it was all age/work related, good thing you had that fall really, although perhaps a bit drastic !

Do you know your calcium and pth levels ? good idea to keep copies of all your blood results so you can keep track of how things are going.

Don't be too surprised if your scans show nothing as they sometimes do come back negative, my mibi scan showed a slightly dodgy bit but nothing on ultrasound, the dodgy bit turned out to be in a different location as well when I had my op ! Even with a negative scan result most good surgeons will still operate if there is strong evidence of an adenoma somewhere, they just have to go on a search and destroy mission !

Hopefully your surgeon is experienced in parathyroid surgery as its vital for a successful outcome, you might want to check the list of surgeons on this thread:
http://hyperparathyroid.forumotion.co.uk/t579-parathyroidectomy-surgeons

We have many members who have felt a difference immediately after surgery but we also have people where it has taken longer to feel better, I include myself in that camp, I would say it has taken me a year but I also have thyroid issues which hasn't helped so don't take much notice of me.

It is a little quiet on here right now, everyone still recovering from the festivities maybe, hopefully someone will be along to add there bit, do keep us posted and if we can help answer any questions just shout, Admin (Edwin) and I are always around.

Take care
Nelly

Hadleigh

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Re: Hello from Oxfordshire

Post by PatD on Mon Jan 04, 2016 8:36 pm

Thanks for reply. I had already found the list of surgeons Mr Radu Mihai is on the list he is at the Churchill Hospital Oxford and he carried out about 50 of the ops in 2014. Not as many as some but more than others. He has done quite a few thyroid ops as well,

PatD

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Re: Hello from Oxfordshire

Post by Hadleigh on Mon Jan 04, 2016 9:04 pm

Excellent news, good to know your surgeon has the experience, hopefully you won't have to wait long for a surgery date and a return to pre hpth normality.

Nelly

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Re: Hello from Oxfordshire

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