Quality of life ......

http://www.medscape.com/viewarticle/515959

This is a really good paper which refers to health related quality of life with hyperparathyroidism - and it's been around for NINE years! So why the heck are the medics not taking notice! 

Jasmine x

Pft - not sure you'll be able to open it without registering with Medscape.... I'll try and find a way to repost it.

J x

You can actually register with Medscape, quick and easy and it's great for those of you who like to do the research.

Jasmine just letting you know that the link took me right to the page. No need to register. I am going to read the whole thing later as I have been busy helping out my mother in law, and it is taking a toll on me.

The link takes me to the log-in page, bizarre.

Log-in page for me too.

Audrey

Wow just looked at it again, took me right to the link.

It is a good article.

http://www.medscape.com/viewarticle/515959

Try this link; it took me right to the paper - fingers crossed.

J x

Nope, still doesn't work for me. 

What is the actual title of the article ?

Odd that some can see it and others can't .......

This is the paper Nelly:

Hyperparathyroidism, Cognition, and Health-Related Quality of Life

Laura H. Coker, PhD, Kashemi Rorie, PhD, Larry Cantley, MD, Kimberly Kirkland, PsyD, David Stump, PhD, Nicole Burbank, MD, Terry Tembreull, BA, Jeff Williamson, MD, Nancy Perrier, MD
Disclosures
Annals of Surgery. 2005;242(5):642-650. 


J x

Ok got it via google, shame my mushy brain had trouble making sense of it but I get the gist, thanks for posting it Jasmine, will add it to the reference bit when Mr Admin gets back.

Nelly

Is this the same paper?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1409861/

If so, I will use this link, as it does not require a login.

Edwin

Yep

Ta

It has been added to the Reference Section.

E

Thanks for sorting it out Nelly and Edwin .....

Jasmine x

Jasmine,
     I had seen this article a short while ago.  I agree with you, it is a good one.

It's validating for us to see these things in print.  I am amazed when some people don't have any symptoms but yet have high calcium.  Some of my symptoms have improved a fair amount since my surgery in May.  

    Glad to see Hadleigh is going to include this in the reference section.

How are you Jasmine?   I hope you are not feeling too bad.

Thinking of you,
Nancy

Hi Nancy, good to hear from you! So glad that some of your symptoms have improved, that is good news. I'm pretty much the same, not much has changed, some good days, some bad and some very grim - standard for this wretched disease grrrrr.......! Not sure if you had a chance to see my previous posts as I understand you've been having problems accessing the forum, but I tested negative for FHH thank goodness, and now waiting for Fausto Palazzo to arrange 4D CT and selective venous sampling. I keep trying to go forward, as we do .....

Jasmine x

Thank you Jasmine, a really interesting and relevant paper.  It is a shame some endo's do not seem to be able to keep abreast of new developments or change their outdated thinking and thus their patients suffer.  I have news which I will post in a separate topic showing yet more ignorance and incompetence.
Sue x

This is also interesting, Jasmine. If I have understood it correctly ( ) it seems to be saying that there is a possibility that patients with double adenoma in whom hypercalcaemia persists may actually have had a type of PTH gland hyperplasia in the first place, and so further enlarged glands might be there to find.

http://europepmc.org/abstract/MED/24656398

Love from Tigerlily xxxx

Well funny you should say that Tigerlily because my thoughts have been turning towards hyperplasia lately .... I'll give it a read and comment later.

J x

Oh, god, Jasmine, I do hope it's not that, because that might lead one to think of MEN1, which is what I'm looking at for me at the moment with all my lumps and bumps. Patient.co.uk has some good info on MEN1 - sorry!

Love from Tigerlily xxxx

And this has 42 pages of useful stuff on MEN1 - oh, god, no .....!

http://www.ncbi.nlm.nih.gov/books/NBK1538/

Tigerlily xxxx

Well, with everything that's going on you do start to wonder - and Miles Levy did refer to it in a letter to FP. God, I hope not too ..... not going there unless I have to ......

J x