Anyone told they are not a candidate for surgery after scans etc?

Hi Pat
I am pre op, I also have inconclusive scans, I do think it set me back, My calcium is always over 10.3 up to 11.3 my pth is mostly normal. Sometimes when your labs are not staying elevated they want to watch and wait. There have been a ton of people with negative scans that had successful surgeries, Scan are often worthless, Doc's mostly dx by what your calcium and pth levels are. What is your pth level?

Pat, I never had osteoporosis, and I never had kidney stones. I never had an elevated urine calcium. I never had an elevated ionized calcium. Some of my serum calcium and PTH levels were normal too, but my PTH was always inappropriately high for my calcium levels. I had 2 tumors removed in November! Had I had any scans before surgery, they would have more than likely been negative, because the 1 that was done the morning of surgery in Tampa was negative. Yes, please do email Dr. Norman! He will diagnose you solely by your serum calcium and PTH levels. You will need several sets of labs, though, for him to be able to diagnose you. He dismissed me the first time I contacted him. I only had 3 sets of labs at that time. He couldn't be certain. I waited 2 more years and contacted him again. That time I had a whole slew of labs for him. He diagnosed me immediately! Good luck!

Audrey

I know some people have said they e mailed Dr N without paying his fee and he has responded. If you have to pay his fee I would get a new set of labs and get copies of all the labs you have done so you can fax those to him. Always get copies of your labs. There is always a risk of going hypopara low calcium no matter what your levels are. If you trust your endo stay with him or see a good local endo surgeon. Dr N is a good surgeon but he could refuse to do surgery on you also. I would hope not but he has refuse some before and then accepted them a year or two later. Good luck to you , I do know how desperate this disease can make you.

Audrey I think we were typing at the same time. Your faster lol

Patcsw - you can have a blood test for Lyme Disease which should show if you are still making antibodies to Burgdorfia Borellia even years after being bitten (and you might not know you had been bitten) - that would be Chronic Lyme Disease.

Check it out on line and get the blood test done. Some people say it is inconclusive but I think it's still worth doing. I thought I might have Lyme instead of pHPT, but my Lyme test was negative.

At least you will have ruled that out as far as possible, when they next say "it could be Lyme".

Love Tigerlily xx

It's always a good idea to ask for a printout of your results, as this enables you to get alternative opinions.

Also, with your symptoms, have you had your Thyroid hormone levels checked?

Edwin

Hi Pat, 
I was given cyclizine tablets a few years back for vertigo but they just knocked me out and felt so tired on them I had to nap in the afternoons.  I stopped taking them and finally worked out the reason I had vertigo was due to anaemia.  I am a great advocate of Floradix tablets for iron as it is gentler on your tummy etc.  I was prescribed some Citalopram back in January but have not taken them yet as was very anxious at the time as HPTH had not been mentioned then.  I think they are supposed to be non addictive.
Sue

Hi pat, I had severe anxiety with parathyroid disease. I  was prescribed 10 mg cipralex=lexapro and 0.25 mg xanax before sleep. They were absolutely not effective,I continued on 10 mg cipralex though.The anxiety continued after surgery,so I increased the dose to 20 mg after 2 months post surgery.I found considerable improvement in anxiety after the 4th month postop. The depression did not improve considerably though.